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Topics: Health

Community Meetings Shape Oregon Health Plan

Confronted with the challenge of health reform, Oregon Health Decisions, a nonpartisan grassroots group, convened hundreds of community meetings throughout the 1980s to develop consensus on the basic values that citizens felt should shape reform. These were used to educate lawmakers, who then developed a reform process that included such meetings as an essential part of public deliberation on reforming Medicaid and extending coverage to the uninsured . The highly popular Oregon Plan resulted from these initiatives. Story and case studies plus.

Index

Story: Citizens Create Dialogue on Values in the Oregon Health Plan

Case Study Plus: Common Purpose in Health Policy: Report of Focus Group Meetings, March 1994: a 33-page report by OHD that includes an account of focus groups conducted by OHD to aid the Health Services Commision in determining how citizens feel about 2 issues: a) whether practice guidelines will be useful within the priorities list established by the Oregon Plan; and b) whether availability and access to some medical technologies should be regulated and managed in a way that reduces cost and redundancy, or for other reasons.

Case Study Plus: A 10-page overview of Oregon Health Decisions from its origins in the early 1980s through the community meetings in 1990.

Contents

Story: Citizens Create Dialogue on Values in the Oregon Health Plan

Citizens Create Dialogue on Values in the Oregon Health Plan

Story prepared by: Carmen Sirianni, editor-in-chief of CPN

A genuine civic dimension in health involves citizens in creating and implementing policy. Without this it is very difficult to develop policies for which the public will claim ownership. If citizens are to buy into reforms that effectively address the knotty questions of universality of coverage, a basic minimum benefits package, equitable funding, and freedom of choice, they need the opportunity to deliberate together about what the values of equity, dignity, and choice in health care really mean to them, as well as the chance to consider various strategies and tradeoffs that they might find reasonable in achieving these values.

Oregon Health Decisions (OHD) has pioneered in this, holding hundreds of community meetings and two statewide health care parliaments in the 1980s. These prepared the ground for a state reform process beginning in 1989 that was triggered by the spiraling costs of Medicaid and widespread public concern about who and what was covered. The process continues today with extraordinary success and support among the broadest array of local and state groups: seniors and disabled, poor women and children's health advocates, medical and nursing associations, insurance companies and small businesses, and the hundreds of thousands of others who had previously been left uninsured.

The Oregon Health Plan developed unusual bipartisan support, with only five dissenting votes in both houses of the legislature combined, and the Senate President John Kitzhaber, who spearheaded the reform process, was subsequently elected governor. In less than two years since the plan went into effect, some 35,000 people have left the AFDC rolls, largely because they no longer need to be on them to receive health coverage. And while there was loud opposition from some national advocacy groups to the plan's priority setting and rationing procedures under Medicaid, state reformers have been addressing their concerns, and continuing to expand the already high level of support for these procedures not only among the general public, but among the very constituencies that some feared would be most harmed.

There are various factors that account for this extraordinary success. Not the least of these is that Oregon Health Decisions had developed methods for getting citizens to deliberate respectfully and responsibly at community meetings about those things they value most in health care, and then convinced the legislature to incorporate these and other methods of public deliberation into the heart of the reform process. The community meetings identified prevention, equity, community compassion, personal responsibility, and cost effectiveness as key values. And they provided a good sense of how citizens who are given a chance to deliberate about these values together can confront the common sense reality that they cannot have everything, especially in a high tech medical culture, but must make sensible choices informed by shared values and limits.

The Health Services Commission, with its consumer and provider representatives, paid a great deal of attention to these community meetings in its own public deliberations, and the legislature, in turn, agreed to respect the priority setting process that emerged from the latter.

More information

Oregon Health Decisions
821 SW 10th Avenue, Suite 203
Portland, OR 97205
Phone: 503-241-0744; 1-800-422-4805
fax: 503-241-0323
Mimi Luther, Executive Director.
e-mail: ohd@e-z.net

Michael Garland: 503-494-2554; fax:503-494-4981
e-mail: garlandm@ohsu.edu.
Center for Ethics in Health Care
Oregon Health Sciences University
3181 Sam Jackson Park Road, CB 669
Portland OR 97201-3098.

Dr. Ralph Crawshaw, M.D.: 503-233-8811.

Darren Coffman
Executive Director
Health Services Commission 255 Capitol St NE, Fifth Floor
Salem, OR 97310
Phone: (503)378-2422 x 413
e-mail: darren.d.coffman@state.or.us

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